Planning and Recovering From Tonsillectomy and Adenoidectomy
Let’s start with my own tonsillectomy recovery story. I wasn’t always this healthy. As a kid I ingested more penicillin than a corporate-raised chicken. I was in the doctor’s office several times each year with a sore throat. As the doctor or nurse peered into my mouth, the reaction was always the same: “Whoa, those are some big tonsils!” The diagnosis was usually tonsillitis, or strep throat. As the doctor wrote the prescription, he’d explain that years ago, tonsils like mine would have been removed, but, “these days,” we try to hang onto them. “These days,” were the 1970’s. I guess the tonsillectomy pendulum had swung back from the days when kids got their tonsils out because their brother was getting his out.
Aunt Kate’s reassurance helped, but I still wrote out some just-in-case instructions for my brother and hid them in my closet. I sheepishly told him where they were, just in case.
“This is temporary. You WILL feel better. Hang in there and stay hydrated!” -Greg Tooke
As an adult I continued to suffer from frequent bouts of tonsillitis. It seemed that I caught every bug that passed through my house or workplace. I guess those big ugly tonsils were a nice home for those nasties. It wasn’t until my 40’s that I also became aware that I suffered from something called, Obstructive Sleep Apnea -a condition in which a person stops breathing while asleep. I snored often and would awake abruptly, gulping in big breaths. I felt tired most days. After raising four babies, I had come to accept fatigue as a normal part of life! One day at a routine physical my doctor remarked about the number of episodes of strep throat and tonsillitis I’d had. We also talked about the sleep problems. While he didn’t formally diagnose obstructive sleep apnea, he suspected that I had it. He recommended a tonsillectomy, because of all the tonsil problems I’d had. As a bonus, I might find relief from the sleep apnea as well. If not, I’d undergo a sleep study. Forty four years old and father of four boys and a doctor finally said it: Those tonsils are doing you more harm than good! As much as I hated those tonsils, I was terrified at the thought of going under the knife. I started reading about tonsillectomy recovery on the internet and talking to friends. That didn’t help. “My cousin knew a guy who got a tonsillectomy and bled to death.” “At your age, tonsillectomy is dangerous.” When I met with the ear, nose and throat specialist, (an otolaryngologist), he told me that the risks are the same for an adult undergoing tonsillectomy surgery as for a child, but tonsillectomy recovery is longer and more painful. He was right about that!
Deciding to get a Tonsillectomy
I scheduled the surgery for the day after Thanksgiving. A traditional day of feasting in the United States. If it was to be my last meal, I planned to make it a good one! As it turned out, I was so nervous and scared that I could hardly eat on that day. I was recently divorced and had shared placement of my four boys. So many people counted on me that I began to question my decision. What if I died on the table? How reckless to leave behind a family, simply to avoid frequent tonsillitis? My aunt, a registered nurse reassured me about how simple the surgery was, and how far anesthesiology had come. I had nothing to worry about. Aunt Kate’s reassurance helped, but I still wrote out some just-in-case instructions for my brother and hid them in my closet. I sheepishly told him where they were, just in case
“My tonsils were like a 400 pound gorilla on my back. I don’t miss them at all. Ever.” -from the forum ________________________________________________________________________________
I took a week off from work, asked my ex wife to take care of the boys that week, and asked my uncle to drive me to and from the hospital. (a requirement with anesthesia) That was about all the tonsillectomy recovery preparation I did. I was about to learn a lot! Surgery went fine. I awoke in recovery with a serving of Jell-o in front of me. (“Jelly,” to my British friends) The nurse said that I had to finish it before I could check out. I swallowed it with great relish. It was divine! I called my uncle and we were out of there. I felt ok. I told him thanks and not to worry. I’d be fine. I believed this. Aside from a couple visits, I spent the next ten days alone in misery. The pain set in after about 24 hours. Streaming movies and television shows were my friends. Sleeping became my worst enemy. I’d wake up with my mouth dried out and my throat on fire. Oh my God. I was not prepared for this! I ran out of Popsicle’s on day three. I ran out of pain medicine on day five. The pain peaked on day seven. I broke down and cried in front of my brother on day eight- a combination of pain, drug induced depression, and sleep deprivation. Since then, I’ve read thousands of similar accounts on the tonsillectomy forum I created. It didn’t have to be so hard. If I’d known what I do now, I could have done so much to make my tonsillectomy recovery better. I hope to reach as many people as I can to help guide them through the tunnel. It has been my passion and taught me more about compassion and the amazing strength of the human spirit than any other life experience. When you shine a light for others, you also light your own path.
In the pages at follow, I’ll share tonsillectomy recovery tips with you that I learned from my tonsillectomy experience and years of coaching others through tonsillectomy and recovery.
Hi ,
Starting day 3 on prednisone and lumps are not going away…….really bummed. I’m doing everything from not eating inflammatory foods to taking powder Vitamin C. I’m at a loss…..day 28 post surgery. I know it hasn’t been 2 weeks but would of thought some improvement by now. The glands in my neck were swollen last night. I used ice pack…….the swelling around the area seemed to get better but not the lumps.1 on each side where the tonsils were.
Thanks.
Thank you Greg Tooke for this thread…..God Bless!
Hi,
Previous message marked Alan is Les. I’m really praying for some encouragement. In the recent post I had a lot of anxiety. I was told today I have reacting tonsil tissue with inflammation. My worries are cancer. I was put on steroid for 2 weeks and off work for rest of week. I was also told this happens and it’s very uncommon….like 2% of people encounter this. I would like to know if anyone had inflammation of left over tonsil tissue anytime after surgery. Mine seem to be found 3 weeks after! If this doesn’t go away they will do a CT scan. Any help and hope would be greatly appreciated. I’m so far depressed it’s not even funny. All my pain is right side. I was told by a second ent with Cleveland Clinic that I should be healed in a month…….? Everything I read here has been contradictory to what doctors expectations are. I have lost 22 pounds only 5 to 7 pounds since surgery. I do not see the light for me at the end of this tunnel. I’m not trying to frighten people……I had my tonsils removed due to right side being enlarged and cryptic due to tonsil stones.
Overall surgery wasn’t bad and was what was expected. I got better but to get worse. This means some areas I improved and some just got worse and would change day by day. I thought when I got these things out I would feel better. My problem started in December and January when I had back to back colds in 2 weeks. Then my tonsil became inflammed and sore and hurt to swallow like a lump was always there. If anyone can help or knows a good ent who can answer to this thread it would be great.
Hi,
Day 25 and I had followup. I guess I have a reactive tonsil tissue with inflammation. Dr. Gave me 2 weeks steroids and off work now till Sunday. Really upset. He stated if doesn’t get better then I will need ct scan for the big C word. Totally upset. Anyone ever had this issue after tonsillectomy……please respond.
No help?…..really?……disappointed in this thread!
Hi Les, I am sorry to learn of your expressed concern that you didn’t receive any help from this forum. We have all been thought tonsil removal, (and the subseqent recovery) and share our own experiences in this forum hoping that other folks in recovery will gain helpful hints to make their recovery better
– along with the phenominally helpful information appearing in (Greg Tooke, our forum host) drop-down menu at the top of this page, We are NOT doctors/surgeons, no one is paying us for our time. We are a group of compassionate recoverers offering validation via our experience. No one can disseminate medical advice, but refer you to your own Doctor for a medical opinion. Undoubtedly, the lump you speak of is TYPICAL swelling associated with anticipated swelling post-op, and I truly hope the condition isn’t more nefarious in nature. Once one of us gain access to a crystal ball, you will be the first to be contacted. Good luck, wishing you a speedy recovery@!
I didn’t mean for you to take that wrong…….I just didn’t get a reply……sorry just upset.